Jack's Tomorrow

We're grateful for the commitment of these generous sponsors of our 2026 Swing For A Cure fundraiser! Our event sponsors are crucial to our efforts; they're directly helping to fund research to develop a treatment for PURA Syndrome.⁠ ⁠ If you want to join the team, head to the link below to browse our sponsorship opportunities, including our Cocktail & Driving Range Sponsorship options. Our Cocktail Sponsors enjoy their name and logo featured at the cocktail reception, a mention in our newsletter, and a highlight on our website while our Driving Range Sponsors enjoy their name and logo on a driving range sign as well as a mention in our newsletter. 🤍 https://lnkd.in/eE3JP-3J ⁠ #RareDiseaseAwareness #FundraisingEvent #PURASyndrome

We are so proud to partner with The Jackson Laboratory and inspiring leaders like Cat Lutz! An enormous thank you to JAX Rare Disease Translational Center for taking an interest in PURA Syndrome when we first developed our mouse model, partnering with us to create our iPSC lines, and being a steadfast partner ever since as we work towards developing a therapeutic. Thank you to The New York Times for telling this important story and other trailblazers like Wendy Chung and Tim Yu who took our calls in the early days and were interested to learn more about PURA Syndrome. 

Children across the world living with PURA Syndrome are relying on us to accelerate research so we can identify a treatment. Will you support us in getting there? We have several corporate and personal sponsorship opportunities available for our Swing For A Cure fundraiser this October. Head to the link below to become part of the movement for a cure! https://lnkd.in/eE3JP-3J #RareFamilies #RareDiseaseCommunity #FundraiseForRare 

We are over the moon to share that Jacqueline Towers-Perkins will be joining us at our flagship fundraiser, Swing For A Cure, on October 1st. Jacqueline is a joy and brings such energy and passion to her work. Trust us; you don’t want to miss the amazing programming we have planned. 💞 Grab your ticket now at the link below! https://lnkd.in/eE3JP-3J #RareDiseaseAwareness #FundraisingEvent #PURASyndrome #CommunityStrong

Looking to support the critical research on PURA Syndrome that we fund? This is your chance ! 👀 Swing for a Cure, our annual fundraiser, is our flagship event and fundraising opportunity. Its continued success in large part is thanks to our generous sponsors! Head to the link below to claim one of our sponsorship spots! https://lnkd.in/gaQXZQMc We're grateful to Goldman Sachs, Bloomberg Philanthropies, Bank of America, BNY, and all of last year's sponsors for making it an unforgettable day. ⁠ #RareDiseaseAwareness #FundraisingEvent #PURASyndrome

Jack’s Tomorrow is pleased to announce continued funding for Phase 2 of our research partnership with Yale School of Medicine, led by Dr. Yong-Hui Jiang — a physician-scientist whose work helped discover the gene behind Angelman Syndrome and led to the first Angelman mouse model, now used by researchers worldwide. 🫨Dr. Jiang also recently led a $40 million NIH-funded program developing a CRISPR-based gene therapy delivery platform for the brain. We are grateful to have a researcher of his caliber and character focused on PURA Syndrome. This $374K investment supports a rigorous comparison of PURA Syndrome mouse models alongside patient-derived cell research — work that will clarify the disease mechanism and lay the groundwork for therapeutic strategies, including a promising approach to boost expression of the healthy gene copy in PURA Patients. Jack’s Tomorrow’s mission has always been clear: not research for its own sake, but research that leads to treatment. We’re grateful to everyone whose support makes this possible. If you haven’t yet, be sure to join us on October 1st for our annual flagship Swing for a Cure Fundraiser to connect with our team and support the incredible work of scientists like Dr. Jiang. Grab your ticket now at the link below: https://lnkd.in/eE3JP-3J *#GeneTherapy #RareDiseaseResearch #MedicalInnovation #ResearchPartnership #PURAstrong*

We're excited to return to share our research at the PURA Syndrome Foundation Conference this year. ✨As we reflect on the research we've funded, we're reminded that none of it would be possible without you, our donors. All of our research collaborations, from JAX Rare Disease Translational Center to Yale School of Medicine, exist because of your continued generosity. 💙 To help us continue funding this critical research, be sure to buy your ticket for our Golf & Pickleball outing on October 1st! This yearly event is how we fund the majority of our research and is the best opportunity to support our work this year... not to mention the excellent golf, great company, and delicious food and drinks. 🍸 You can save your spot now at the link below ! https://lnkd.in/eE3JP-3J #RareDiseaseAwareness #PURASyndrome #RareDiseaseResearch

It's our sweet boy's birthday today! 💙 Jack is joyful, kind and incredibly hardworking. He shows us more and more each day how lucky we are to be his parents and we're so excited to see what this next trip around the sun holds for him. We love you Bub, happy birthday !

Meet us in the Hamptons this fall! We can’t wait to connect with you over golf, pickleball, good food and drink and some exciting auctions on Thursday, October 1st. This annual fundraiser is how we fund the incredible research we’ve been sharing with you. Without the generosity of Bloomberg Philanthropies, Goldman Sachs, Bank of America, and our other amazing sponsors, we wouldn’t be able to fund this science. We’ve been pouring so much into this event and we know that it’s going to be an amazing day. If you’ve been looking to give back or for the opportunity to share your brand with a larger audience, we have a variety of sponsorship opportunities for you to browse at the link below: https://lnkd.in/eE3JP-3J Thank you, as always, for your generous support. #RareDiseaseAwareness #PURASyndrome #CommunityStrong

We’re incredibly grateful for our collaboration with The Jackson Laboratory (JAX) and the teams working to advance rare disease research through translational science, precision disease models, and therapeutic development. Rare disease research has the power to deepen our understanding of human biology and drive progress across medicine. It’s exciting to see continued recognition of how impactful this work can be for patients, families, and the future of treatment development. Thank you, JAX! A great read highlighting this important work: https://lnkd.in/eWjc2E7T #GeneTherapy #RareDiseaseResearch #ResearchPartnership #PURAstrong