PHARMO Institute, part of Lumanity’s Post

Generating Real-World Evidence (RWE) in SMA faces hurdles due to evolving standard of care with recent treatments, inconsistent outcomes measurement due to age at treatment initiation and severity baseline, and the need for long-term follow-up. The PHARMO Institute, part of Lumanity, is uniquely positioned to deliver clinically rich insights into SMA disease history, treatment patterns, and outcomes, and invite you to test your research objectives with us, including with: - Patient characteristics and long-term outcomes - Neurodevelopment and pathophysiology - Evolving standard of care and treatment - Long-term safety and durability - Healthcare resource utilization (HCRU) Access our one-pager at https://lnkd.in/eRNUXp4r and connect with us at contact@lumanity.com. #SpinalMuscularAtrophy #SMA #GeneticTesting #SMAScreening

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