As a woman global patient advocate living with a rare bleeding disorder-Factor Seven Deficiency, this celebration of women advocates and leaders in the bleeding disorders community worldwide gives me HOPE! In the lives of countless women and girls around the world, we have been told repeatedly we do not bleed abnormally and we do not have hemophilia, I say thank you to these women advocates and leaders with Paxton Mills whom are proof we will no longer live unheard, unseen or properly partnered with for care. We do indeed live with bleeding disorders and we have insights and solutions to improve care and comprehensive treatment for our conditions. We will absolutely chart a new course in healthcare, program and policy development also research and clinical trials where we will participate fully in how our care is developed, designed and implemented. Gone are the days where we no longer have agency over our minds, bodies and treatment as women living with bleeding and blood disorders. Therefore, let’s celebrate Paxton and her peers from around the world for being the continuation of (agents of change) for women and girls like Susan Skinner! These ladies are our “now” and future leaders.
With that said, let’s never forget the trailblazers that cleared the path with this work. Here is a list of women advocates and leaders in the blood and bleeding disorders community that started this journey. We will not forget their names and contributions to women and girls living with bleeding and blood disorders : Winifred Mayer Ashby, Dr. Rosalyn Yalow, Judith Graham Pool, Lucy Brice, Majorie Bick, Ruth Sanger, Dr. Dorothea Zucker Franklin, Lucy Wills, Dr. Clarice Reid, Dr. Helen Ranney, Eloise “Elo” Giblett, Dr. Marilyn Hughes Gaston, Dr. Jane F. DesForges, Roshni Kulkarni, Dawn Rotellini,
Ayana Woods, Sonia Roger, Susan Lerch, Jeanne White-Ginder, Blanca Ramirez, Barb Forss , Megan Adediran , Meera Chitlur, Suzi Cannon ,Sharon Meyers, Ed.D., CFRE , Krishna Cannon , Sophia Minhas ,Dr. Anna Bell, Cathy Tiggs MSSA, LISW , Jane Cavanaugh Smith , Jennifer DeGlopper , G Shellye Horowitz , Johnson, Murai , Danielle Nance , Dr. Ming Y Lim, Kerry Bozza Funkhouser , and Keri Norris PhD JM MPH MCHES. Please add to this collection of women in the comments only if the lady has had a major role in improving the care of women and girls living with bleeding disorders in your country. We must encourage the awareness of the importance of the work taking place around globe for and with us and our legacies in women’s healthcare in bleeding disorders. Ladies, we must stay vigilant in ensuring and leading the way. We educate, elevate and create optimal women’s bleeding disorders care. 🎉🎉🎉
Women leaders are shaping the future of #BleedingDisorders care. 💙
At the WFH 2026 World Congress, 11 recipients of the Susan Skinner Memorial Fund (SSMF) scholarships were recognized for their commitment to advancing care and advocacy.
Inspired by the experience, they are already planning initiatives, from supporting research to creating new opportunities for women and girls with bleeding disorders in their countries. Read how these remarkable advocates are turning knowledge into action: https://bit.ly/44zfWzY
#Hemophilia #TreatmentForAll #WGBD
Children experience the impact of school meals every day so their voices provide insights that numbers alone cannot. Listening to them is a key part of safeguarding and accountability. Their voices help us identify risks, improve services and make better decisions that truly meet their needs.